eHealth Week 2017
 

EFMI-HL7 Partner event at the eHealthWeek 2017

Connected health data meet the people: diversity, standards, and trust.

Thursday May 11, 2017, 11:45-13:00, Room Jupiter, Hotel Intercontinental, Valetta, Malta

Using health data in a connected world requires new competencies, a personal digital health compass calibrated to individual personalities and needs. Patients and clinicians able to collect and manage data, data-operational informatics professionals able to analyze data, and cutting-edge researchers, innovators, and educators able to apply knowledge, will take learning health systems to the next level. In this EFMI-HL7 event using innovative technology and surprises to engage the audience, we will discuss strategies for empowering and activating people to engage, share and use their health data. We will point to diversity, trust and open standards like HL7 FHIR to open up access and capacities to manage data safely for patients, care-givers, and the health system.

Program

Welcome: Catherine Chronaki, HL7 Foundation, Anne Moen, EFMI

The Maturing Telemedicine Infrastructure in Denmark: Building the Human Capital, Morten Bruun-Rasmussen, CEO MediQ

The Maturing a Telemedicine Infrastructure (MaTIS) project prepares the ground for roll-out of telemedicine services as part of an agreement between the Danish Government, regions, and municipalities. Morten shares activities leading to the maturing of this telemedicine infrastructure, and development of the Human Capital necessary when scaling up integrated home monitoring services for COPD patients in five Danish regions. The infrastructure builds on sharing of clinical documents in HL7 CDA between hospitals, municipalities, and general practitioners using an IHE XDS infrastructure. The also include complexity management, education by code camps, performance testing using large scale synthetic data sets, quality management and interoperability testing.

Health Professional Education in Biomedical & Health Informatics: the EFMI AC 2approach, Professor John Mantas, University of Athens, Greece, EFMI Past President

Health care systems need continuously updated professional knowledge and technical skills. Accreditation of programs in Biomedical and Health Informatics could contribute to update and endorse quality of contents, and ascertain a certain level of knowledge and skills of graduates. John will introduce AC2, the Accreditation and Certification initiative for health informatics programs in Europe, and discuss opportunities for comparable international, professional standards that increase workforce capacity to balance health informatics with health professional development across Europe.

Digital health literacy: a necessity for Activating Citizens, Professor Anne Moen, University of Oslo, Norway, VP for IMIA, European Federation for Medical Informatics

Citizen employs personal, robust strategies for self management, maintenance, prevention, or early intervention to maintain their health and wellness. Citizens seeking care for oneself or a family member can take an active role in their healthcare provision, stay informed and make decisions to ensure quality and efficiency of the health delivery processes. To take full benefit of these opportunities they need to develop digital health literacy competences. Personalized and universally designed tools allow citizens to co-create services that help them access, generate or share relevant data or information about related health issues respecting diversity and cultivating trust.

“Internet of People”: Elements of Trust and Risk, Eva Turk, MBA, PhD is a senior researcher in DNV GL - Strategic Research and Innovation, Healthcare program

Eva discusses how the “Internet of People” builds demand for data literacy, governance and custodianship, as well as standards. Using lessons learned in other industries on how to create and maintain trust, the concept “Internet of People” comes with potentials to deliver benefits to citizens and other stakeholders, if the myriad of barriers and risks are recognized and addressed. Trust between partners, stakeholders and citizens can be built through open transparent processes, education, and dialogue enabled by robust standards, systems and governance models.

Workforce meets volumes of electronic information: Why and how HL7 FHIR creates value for stakeholders in learning health systems. Doug Fridsma, President and CEO, American Medical Informatics Association, US

Drawing experiences from the recent HL7-AMIA datathon, Doug will reflect on the potential and practical experiences from using HL7 FHIR to tap the potential of health data for research and decision-making. In this way, operational and research standards can be bridged, making learning health systems a reality. Doug will also share insights from preliminary results of market analysis conducted by AMIA on current and future professional recognition pathways. Health care delivery in the 21st century requires patients and clinicians that know how to manage data, informatics professionals that are data operational in the focus, and cutting-edge researchers, innovators, and educators that will take learning health systems to the next level.

Key Points and Discussion, Catherine Chronaki, Secretary General, HL7 Foundation, Institutional Officer, European Federation of Medical Informatics

Catherine will summarize key points and facilitate discussion with the audience.

Participants

Morten Bruun-Rasmussen, BEng, MS is CEO in MEDIQ. He has been working with medical informatics and quality development for more than 25 years within it-strategies, procurement, regional and national health care networks, standards quality management and interoperability testing.

John Mantas, PhD in Computer Science began his academic career firstly at the University of Manchester and then at the National and Kapodistrian University of Athens. Professor Mantas is Director of the Laboratory of Health Informatics and Director of Postgraduate Studies. He was Vice President of the Cyprus University of Technology and Dean of the School of Health Sciences; during his deanship, he established in Cyprus the international Department of Public Health with the close collaboration of Harvard University. He has been President of EFMI for the period 2010-2012, and Vice President IMIA for the European Region from 2012 to 2014. As Working Group chair on Education, he led the initiative in revising the Educational Recommendations in Biomedical and Health Informatics. In 2016 he became Honorary Fellow of the European Federation for Medical Informatics.

Anne Moen, RN, PhD, FACMI is professor at the Institute for health and society, Department of Nursing Science, and the director of UiO:eColab. She is adjunct professor at University of Wisconsin-Madison, WI and the University College of South east Norway. Her research activities combine in-depth insights in healthcare with design and deployment of accessible, user-empowering ICT-solutions. She served as President of the European Federation for Medical Informatics (EFMI) 2014 - 2016, and is the current regional EFMI – IMIA Vice President (2016 – 2018). She is member of EU eHealth Stakeholder Group (2016 – 2019), and task leader of subarea “Citizen - Health Data”.

Eva Turk, MBA, PhD is a senior researcher in DNV GL - Strategic Research and Innovation, Healthcare program. Her current research is focused on Person centred care and digitalization of healthcare- Internet of People. Eva has a PhD in Health Sciences from University of Oulu in Finland and an MBA in Healthcare management from Vienna University of Economics and Business Administration.

Doug Fridsma, MD, PhD, FACP, FACMI, is the President and Chief Executive Officer of AMIA, representing 5000 professional and student informaticians members and their interests and activities in academe, industry, government and nonprofit organizations. Dr. Fridsma was the Chief Science Officer for the Office of the National Coordinator for Health Information Technology, responsible for the portfolio of technical resources needed to support the meaningful use program and health information technology interoperability.  While at ONC, he developed the standards and interoperability framework. In collaboration with the NIH and other federal agencies, he was instrumental in establishing the key priorities in the PCOR Trust fund. He has served as a board member of HL7 and the Clinical Data Interchange Standards Consortium (CDISC) where he was instrumental in developing standards that bridge clinical care and clinical research.

Catherine Chronaki, BEng, MS is the General Secretary for the HL7 Foundation. She is active in eHealth Policy and Standardization projects. Following the success of Trillium Bridge project on the transatlantic exchange of patient summaries, Catherine now leads the Trillium II to scale up adoption of patient summaries in an innovative global community. She is also coordinator of the eStandards project, set up to develop a roadmap for collaborative standards development in large scale eHealth deployment. Catherine serves on the eHealth Stakeholders group of the European Commission and the board of the European Federation of Medical Informatics and she is member of the eHealth Unit of the European Society of Cardiology, and founding member of the HIMSS community of women in Healthcare Information Technology.